Last Monday Eli had his mickey button put in. My mom went with me since Rafe had to work and it went smoothly. I admit I left the room when they did it, I don't stomach some things so well. My mom stayed in the room with him and he only cried for a few minutes. It was probably more of being held down then the tube being taken out of his stomach and a little balloon type thing being put in. A few minutes later he was calm and smiling again, what a trooper!
I am not sure if I like the button yet or would just prefer him having the tube. Bath time is easier but feeding time in the middle of the night is not. He has this approx 8 inch tube that connects to the button; with a 360 degree turn it locks in. Then I connect his long tube that connects to the feeding bag to it. He has made great improvements on his bottle feeding now. He has done 50ml a few times now, his feedings are 70ml in total. After the Glen (heart surgery #2) his bottle feeding should improve greatly!
Friday the 30th Eli is scheduled for his cardiac cath lab at 6:30am. I asked what the purpose of it was since he frequently has echo cardiograms done. Dr. Husayni said it is to accurately measure the pressures in his heart to find out when to schedule the next surgery. For some reason I am kinda scared for Friday, maybe its because I know he will be sedated or that they are physically going into his heart.
Eli is making such great improvements I couldn't be prouder. He is 9.5lbs and 21.5inches long now. He was 6lbs and 19 inches at birth. His neck control is a work in progress but I would say he is 80% there. He hates tummy time, I don't blame him I hate laying on my stomach too! A few days ago he even laughed for the first time, it was adorable! I will be sure to update after the cardiac cath lab.
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