A little bit of this and a little bit of that

My boy is 18 months old already, WOW! It truly amazes me how fast time flies. We have not had any major medical issues and things have been coming along great. He did get a cold that lasted almost two weeks but even that he took like a champ. He had an ear infection early on in November and then another one again during his cold but both times we had no idea because they weren't bothering him. Eli is not a fan of oral medications so it's been a real treat trying to get those in him.

As cute as they come! 

I've been going around in circles trying to get his synagist shot for him and I keep getting the run around. He is now a month behind because we had to wait for insurance to approve it and then the specialty pharmacy couldn't figure out which of our insurances to bill for it. Today after 3 phone calls and talking to two different pharmacy companies I was told they had contacted my pediatrician back in November. So now I have no clue who is supposed to be sending these shots and I'm awaiting a very not so pleasant call to the pediatricians office. I've decided that I will be finding a new office for the care of my son because they clearly don't place any importance on him. I'm not asking for special VIP care but they've failed me on numerous occasions and Eli's health is way too important to me. (Sorry I had to vent!)


On a whole other note but still heart related. I've been following a heart family on here and I've always kinda compared Eli to this little girl in the sense that they hadn't had many complications pre or post surgeries. I log on today to write a new post for Eli and come to find out that this little girl just recently had to have a heart transplant. I was completely shocked and frankly a little scared about our future. Just yesterday I was reading all of these comments about how HLHS is "Not life compatible". I had never heard such drastic words to describe it and thankfully our doctors have never used them either. The honest truth is that a heart transplant is more than likely in our future but hopefully way far down the line. I guess it just knocked the wind out of me from yesterdays readings to today's blog about the little girl.

Sorry if this update is a mess, my brain feels like a mess right now as well.